Supporting Family Caregivers at the End of Life

Caregiving as a Risk Factor for Mortality

1999 • 3,251 citations

Factors Considered Important at the End of Life by Patients, Family, Physicians, and Other Care Providers

2000 • 2,411 citations

Patterns of Functional Decline at the End of Life

2003 • 1,305 citations

Quality End-of-Life Care

1999 • 1,272 citations

Approaching Death

1997 • 1,073 citations

Tube Feeding in Patients With Advanced Dementia

1999 • 999 citations

Ethnicity and Attitudes Toward Patient Autonomy

1995 • 938 citations

Patient and Caregiver Characteristics and Nursing Home Placement in Patients With Dementia

2002 • 873 citations

Perceptions by Family Members of the Dying Experience of Older and Seriously Ill Patients

1997 • 748 citations

Symptoms of anxiety and depression in family members of intensive care unit patients: Ethical hypothesis regarding decision-making capacity

2001 • 701 citations

Home Visits to Prevent Nursing Home Admission and Functional Decline in Elderly People

2002 • 656 citations

Dignity-Conserving Care—A New Model for Palliative Care

2002 • 638 citations

Diagnostic criteria for complicated grief disorder

1997 • 635 citations

The Influence of the Probability of Survival on Patients' Preferences Regarding Cardiopulmonary Resuscitation

1994 • 573 citations

Negotiating Cross-Cultural Issues at the End of Life

2001 • 541 citations

An intensive communication intervention for the critically ill

2000 • 503 citations

A Prospective Study of Advance Directives for Life-Sustaining Care

1991 • 493 citations

Preparing for the End of Life

2001 • 465 citations

Understanding Economic and Other Burdens of Terminal Illness: The Experience of Patients and Their Caregivers

2000 • 443 citations

The Impact of Serious Illness on Patients' Families

1994 • 435 citations

National estimates of the quantity and cost of informal caregiving for the elderly with dementia

2001 • 431 citations

Initiating End-of-Life Discussions With Seriously Ill Patients

2000 • 417 citations

Assistance from Family Members, Friends, Paid Care Givers, and Volunteers in the Care of Terminally Ill Patients

1999 • 356 citations

Attitudes and Desires Related to Euthanasia and Physician-Assisted Suicide Among Terminally Ill Patients and Their Caregivers

2000 • 355 citations

A Controlled Study of Respite Service for Caregivers of Alzheimer's Patients

1989 • 342 citations

Stress Reduction for Family Caregivers: Effects of Adult Day Care Use

1998 • 339 citations

Effects of preventive home visits to elderly people living in the community: systematic review

2000 • 328 citations

The health impact of health care on families: a matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses

2003 • 314 citations

When the Caregiver Needs Care: The Plight of Vulnerable Caregivers

2002 • 313 citations

Challenged To Care: Informal Caregivers In A Changing Health System

2002 • 312 citations

Lifestyle interference and emotional distress in family caregivers of advanced cancer patients

2002 • 307 citations

Family support for stroke: a randomised controlled trial

2000 • 265 citations

Involvement in Caregiving and Adjustment to Death of a Spouse

2001 • 255 citations

Ensuring Competency in End-of-Life Care

2000 • 249 citations

Beyond breaking bad news: how to help patients who suffer.

1999 • 234 citations

Estimating the Cost of Informal Caregiving for Elderly Patients With Cancer

2001 • 220 citations

Strategies for Culturally Effective End-of-Life Care

2002 • 215 citations

Caregiver burden and unmet patient needs

1991 • 205 citations

Family Caregiving in Hospice: Effects on Psychological and Health Functioning Among Spousal Caregivers of Hospice Patients with Lung Cancer or Dementia

2000 • 203 citations

Caring for Bereaved Patients

2001 • 198 citations

Can Clinical Interventions Change Care at the End of Life?

1997 • 193 citations

Reverberations of Family Illness: A Longitudinal Assessment of Informal Caregiving and Mental Health Status in the Nurses’ Health Study

2002 • 168 citations

Experiences of Oregon Nurses and Social Workers with Hospice Patients Who Requested Assistance with Suicide

2002 • 164 citations

Efficacy of a Psychoeducative Group Program for Caregivers of Demented Persons Living at Home: A Randomized Controlled Trial

2003 • 156 citations

Advance Care Planning for Fatal Chronic Illness: Avoiding Commonplace Errors and Unwarranted Suffering

2003 • 153 citations

The Trouble with Families: Toward an Ethic of Accommodation

1999 • 151 citations

“I Wish Things Were Different”: Expressing Wishes in Response to Loss, Futility, and Unrealistic Hopes

2001 • 151 citations

Reduced Employment in Caregivers of Frail Elders: Impact of Ethnicity, Patient Clinical Characteristics, and Caregiver Characteristics

2001 • 144 citations

Withdrawal of Life Support

2002 • 138 citations

The Relationship Between Caregivers' Global Ratings of Alzheimer's Disease Patients' Quality of Life, Disease Severity, and the Caregiving Experience

2001 • 137 citations

The mental health of informal caregivers in Ontario: an epidemiological survey.

1997 • 136 citations

Respecting the autonomy of cancer patients when talking with their families: qualitative analysis of semistructured interviews with patients

1996 • 118 citations

A controlled trial of brief psychotherapy and mutual-help group treatment of conjugal bereavement

1988 • 118 citations

Delays in seeking HIV care due to competing caregiver responsibilities

2000 • 114 citations

A national study of the quantity and cost of informal caregiving for the elderly with stroke

2002 • 108 citations

Adjusting to Widowhood: Do Social Networks Really Make It Easier?

1989 • 106 citations

An Evaluation of a Family Visit Education Program

1999 • 104 citations

The Doctor's Letter of Condolence

2001 • 97 citations

Informal Caregiving for Diabetes and Diabetic Complications Among Elderly Americans

2002 • 97 citations

Sleep Disturbances in Parkinson's Disease Patients and Spouses

1997 • 93 citations

The Influence of Caregiving and Bereavement Support on Adjusting to an Older Relative's Death

1991 • 89 citations

Valuing the Outcomes of Treatment

2003 • 78 citations

Is Economic Hardship on the Families of the Seriously Ill Associated With Patient and Surrogate Care Preferences?

1996 • 76 citations

Burden on Family Members

2002 • 74 citations

Patient perceptions of an outpatient palliative care intervention:

2003 • 68 citations

Improving management of bereavement in general practice based on a survey of recently bereaved subjects in a single general practice.

2000 • 51 citations

Stressful life events, social rhytms, and depressive symptoms among the elderly: An examination of hypothesized causal linkages

1994 • 50 citations

Use of routine and breakthrough analgesia in home care.

1999 • 48 citations

Pain and impending death

2003 • 44 citations

Stress in Caregivers of Hospitalized Oldest-Old Patients

2001 • 44 citations

Passing the clinical baton: 6 principles to guide the hospitalist

2001 • 40 citations

Hospital to Home

2003 • 38 citations

Advance directives: Do they work?

1995 • 34 citations

Care of the family when the patient is dying.

1995 • 30 citations

ABC of palliative care: Emergencies

1997 • 29 citations

Dating and Remarriage over the First Two Years of Widowhood

1996 • 29 citations

The Role of Palliative Care in the Home in Medical Education: Report from a National Consensus Conference

2001 • 25 citations

Patterns of Predeath Service Use by Dementia Patients with a Family Caregiver

1994 • 23 citations

Caregiver Attitudes and Hospitalization Risk in Michigan Residents Receiving Home‐ and Community‐Based Care

2002 • 23 citations

Caregivers and Elderly Relatives

1988 • 22 citations

Health care professionals' accuracy in predicting patients' preferred code status.

1995 • 15 citations

Recommendations to Improve End-of-Life Care Through Regulatory Change in U.S. Health Care Financing

2002 • 15 citations

Managing End‐of‐Life Care: Comparing the Experiences of Terminally Ill Patients in Managed Care and Fee for Service

2002 • 13 citations

Predictors of Family Caregivers' Physical and Psychological Health following Hospitalization of Their Elders

1993 • 7 citations

Home care: what a physician needs to know.

2001 • 5 citations