Multidimensional Results Reporting to Participants in Genomic Studies: Getting It Right

Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

2008 • 679 citations

Personal Utilities and Public Judgements: Or What's Wrong With Welfare Economics

1979 • 641 citations

The Incidentalome

2006 • 306 citations

Disclosing Individual Genetic Results to Research Participants

2006 • 286 citations

Informed Consent for Population-Based Research Involving Genetics

2001 • 284 citations

Public Expectations for Return of Results from Large-Cohort Genetic Research

2008 • 278 citations

Informing Study Participants of Research Results: An Ethical Imperative

2003 • 265 citations

Disclosing Individual Results of Clinical Research

2005 • 258 citations

Research Ethics Recommendations for Whole-Genome Research: Consensus Statement

2008 • 241 citations

Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group

2006 • 215 citations

Subjects matter: a survey of public opinions about a large genetic cohort study

2008 • 200 citations

Reestablishing the Researcher-Patient Compact

2007 • 115 citations

The return of research results to participants: Pilot questionnaire of adolescents and parents of children with cancer

2006 • 71 citations

When consent gets in the way

2008 • 71 citations

When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results

2008 • 49 citations